.

Isaiah 43:5

Do not be afraid, for I am with you; I will bring your children from the east and gather you from the west.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Wednesday, September 26, 2012

Surgery Day

Surgery was a success!
PTL!

Michael continues to do very well post operativly.  Pain continues to be the biggest hurdle with Michael's surgery and even that has been quite manageable.  He is being given Morphine on demand via pump (up to a specified dose per hour/per day) and IV Ibuprofen (Toradol) every 6 hours.  His pain is fairly well controlled between these two meds.

The day of surgery was very relaxed and laid back.  Surgery was scheduled for 1:38, lol, but was pushed back due to a power outage in the OR.  They have back up generators that immediately turned on but they did not want begin surgery until the issue was completely resolved.  We gladly waited.


l)
Waiting to go to OR

More waiting...due to power outage in OR dept

Fixing to roll down to the OR doors with  mommy and Kayla

The surgery went as planned with no surprises as we were told by Dr. Pena.  There was only 10ml of blood loss and no complications.  In addition to the issues Michael had from previous surgeries in his birth country, Michael had a rectal stricture which had all but closed off the entire colon.  Dr. Pena had to remove the stricture plus part of the rectum and taper what was left to fit Michael's new anatomy. Everything was sewn back together in it's proper place and Michael is a new little man tonight.  Amazing!

Below is where Kayla and I waited during surgery.  Very nice!
OR Waiting Room

OR waiting room
OR waiting room...empty because we were last to get out.
 It was estimated to be a 4 hour surgery and that estimate was spot on.  I explained Michael's history to the anesthesia team and they allowed Kayla and I to walk him back to the surgery room doors, OR room 16, and they gave Michael versed right then and there.  He began to look groggy and they took him to the OR at 3:15.  Dr. Pena started the actual surgery at 4:37 and finished at 6:20.  It took until 6:59 to get Michael closed and he was off to PACU at 7:01.  Kayla and I got to go see him at 7:40.



I got to see the incision site today and it was both a surprise and exactly what I expected.  It runs from his lower spine, up between both legs and stops at his private area.  There are hundreds of stitches both internal and external.  I expected this but I did not expect the stitches to be hidden as well as they are.  It almost looks as if an embroidery stitch was used.  It's that good of a job!  I wish I could post pictures so you could see just how wonderful everything looks, but I think I will spare Michael the public exposure. lol.


For the next 5 days, we will have to do our best to keep Michael still with his legs mostly together to keep him from pulling out the stitches.  We are lightly wrapping his thighs together in a blanket and it seems to be working pretty well.




For 10 days, Michael will be fed a liquid nutrition through an IV PICC line, which is a type of central line.  He will not be allowed to eat any food or drink any liquids by mouth during this time because they do not want any stool to form and thus pass through the newly created opening while there is a fresh incision with stitches.  We are not supposed to not eat in front of him during this time as it may cause his tummy to growl or distress him since he cannot eat.  So, we eat after he goes to sleep or sneak something with our back turned towards him.  It's tricky.  We can also go eat in the guest lounge but have yet to do this.


For the next month we are to carry him in a 'scoop' hold instead of on our hip as he cannot straddled  anything and we will be double diapering his bottom to provide extra cushion for the incision site.

For the next 5 months there will be twice daily rehab that Jeff and I will be working with Michael on.  I'll spare you the details but it involves keeping scar tissue from forming and closing off parts of the incision site that need to remain open.

Michael is expected to be in the hospital until Oct 6, then we will stay in Cincinnati at the Ronald McDonald House another week to attend daily clinic visits with Dr. Pena plus to take daily abdominal x-rays to make sure everything is working properly inside.  I'll also attend a bowel management program to learn how to care for Michael's new anatomy.  Michael is expected to be released to go home Sept 13!  I cannot wait!!!!!  Though, I will miss Cincinnati and Cincinnati Children's Hospital.  We have had such a wonderful experience here!

Ronald McDonald House

Sunday, September 23, 2012

1:38pm


Michael's surgery will begin at 1:38pm tomorrow afternoon.  Not a minute sooner, not a minute later. lol.  Just cracking up at that time!  Be there or be square.  If you are local, feel free to run by and sit with us.  It should last about 4 hours. 

Cincinnati

We are in Cincinnati!







''We'' meaning Michael, Kayla and myself because Michael is going to have surgery to correct an anal malformation that he was born with.  It's called Imporforate Anus and it's where a baby is born with no opening for waste to exit the body.

Typically, children who are orphans in the country Michael was born in will die from this condition shortly after birth because there are no funds for such a major operation for orphans.  Michael was one of the few who received surgery because the doctors in his region needed to practice performing this delicate surgery.  I'm sure they did their very best, but they were not able to complete the surgery fully and that is why we are in Cincinnati.

Dr. Alberto Pena is our surgeon.  He is a pioneer in pediatric colorectal surgery and people from all around the world come to Cincinnati specifically for their children to be cared for by Dr. Pena.  Just the other day, we sat in the waiting room with a family from Israel, another from India and another from S. Carolina.  We feel so blessed to be able to have Dr. Pena helping Michael.







Michael was admitted Sat, Sept. 22 to begin 2 days of digestive tract clean-out.  He was given an NG tube and GoLightly was started.  This is a solution that liquefies anything within his system so he can eliminate it and be totally clean inside for surgery.

One word of caution....there is nothing 'go lightly' about GoLytely!  It should be renamed GoAlotly with a cautionary disclosure to wear old clothes if you are the one caring for you child receiving this solution!






Surgery will be sometime on Monday if Michael continues to stay healthy.  He developed a junky nose upon receiving the NG tube and is extremely congested now.  No fever or coughing means he can still have surgery.  We're praying it's just irritation from the tube and nothing more!

We did have a few hours on Thursday after clinic visits and testing so we walked over to the Cincinnati Zoo.  It was mostly overcast with cool temperatures and a perfect day to go to the zoo!








We are so blessed to know several families through Reece's Rainbow who live right here in Cincinnati!  They have all been extremely helpful sharing information and experience about Cincinnati and the Children's hospital.  My friend Jamie even took us to Walmart the other day to pick up a few things that we could not fit into our carry-on bags!!  Thank you Jamie!!!!!


I'll update when I can as soon as surgery is over.  Thank you all so much for covering Michael in prayer.  Knowing he is being lifted up is so comforting.

Jeff is taking time off work and is staying home with our other kids while we are in Cincinnati.  He is settling  into a pretty good routine and things are going well.  Prayers for him are certainly welcomed as well!


Wednesday, September 12, 2012

The Least of These


Today I'm yelling for Donovan.

Today I am yelling for Sonny.

Today I am yelling for Marla...

Because it seems they are being starved, beaten and/or abused to death while they languash in institutions around the world.  Their situations are extremely critical and their only hope is for us to be their voice and yell for them and pray a family steps forward to rescue them.

They have no mommy and daddy fighting for them.  They have nobody fighting to keep them safe, and warm, and fed.  They have no voice.  They have no one....

But us.

This is Donovan. 



                        DONOVAN

Click on his picture so it will enlarge.  Do you SEE him?  Do you see the plates in his skull?  Do you see his ribs under his shirt?  He is starving to death.  He is not cherish.  He is not loved.  He is not even fed enough to sustain him.  Sweet Donovan.  A child of God.  A child who was born and discarded to be hidden away until death claims him unless someone steps forward and claims him as their son.  Is that YOU?

~~~~~~~~~~~~~~~~~~~~~~~~~~


This is Sonny.



                SONNY

The picture above was taken of Sonny just after he was transferred to an adult mental institution.  He is bruised and beaten there.  It's no place for a little child but that is where is and will remain until someone sees him as their son and goes to get him.  Or, until death claims him.

Below is a picture taken of Sonny right before transfer.   He still had a spark in his eye and a little spunk.  That spark, that spunk to Sonny's spirit is still within him.  He needs to get out of the institution for it to shine again.  Are you his family?  Do you have room in your life for a lost little boy who needs a family?




~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~


This is MARLA!



Marla has CP and has such a sweet, loving personality according to her profile.  She is in a 'laying down' room since she cannot walk and will spend the rest of her days in that room, in that bed unless he is adopted and taken out.



LOOK at her SMILE!  It just melts my heart.  She is such a treasure.  Such a gift.  I pray that someone will come forward for Marla.  That she will be given a chance to become all that she can.  That she will be taught about our Lord and Savior and His amazing grace.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~


I have said that these children have NO hope, NO chance unless they are adopted and that is true for most of them because it is almost unheard of for biological parents of children who have Down syndrome and other special needs to return to the institution and fight to take their child back home.

But, every once is a great while, a miracle happens and a family does return to reclaim their once forgotten child and that is exactly what is happening right now with little Wren below.

SHE was the reason that I called for this Blog Blitz in the first place.   The hollow, scared look in her eyes which are black and blue from abuse.  Her bloodied lips.  Her frail, skin-and-bones frame under dirty clothes.  All sign of abuse and neglect.  SHE has no voice so we all decided to screem for HER today and others in situations like hers.

I asked an fellow adoptive mommy who has contacts in the country that Wren is in to check up on her.  What she found out was nothing short of a miracle.

Wren's bio family is working hard to bring her home!

WOW!  Praise God!  Thank you, God!!  We will pray for this family, that they can get her out of this dire situation and love her and cherish her like she was meant to be from the beginning, before it is too late.

  

~~~~~~~~~~~~~~~~~~~~~~~~~

Please contact Andrea from Reece's Rainbow  if you are interested in adopting any of these children.

Also, please hop over the the other blogs and take a peek at their posts for our Blog Blitz.
 
Heather: http://mt2ia.blogspot.com/

Grace: http://sister-love-blog.blogspot.com/

Sandra: https://www.facebook.com/marlamatters2us

Lydia: http://www.eightisnotenough2012.blogspot.com/

Monica: http://www.xmaswarrior.blogspot.com

Friday, September 7, 2012

SIX years! A birthday story!


Michael turns SIX today!!!



Happy Birthday sweet boy!


You are our amazing son!


We love you so much!!!


Happy Birthday, Michael!



Related Posts with Thumbnails